NT scan - fluid 6.0mm at 12 week scan- terrified, any help out there?

(17 Posts)
Earhat Mon 24-Sep-12 19:11:12

Hi
I am new to Mumsnet and am expecting my first baby. I had my first scan today at 12 weeks and an NT scan which read 6.0mm. I am so worried and I am going to have a CVS test on Wed with results due Friday.
The baby's heartbeat was very strong and it was moving well according to the sonographer, who could not see anything else which concerned her. My DH and I were taken to a quiet room and had a consultation with the midwife which felt very ominous.
I am 39 years old and this is the first time I have been pregnant after a long time trying. Can anyone give me any advice or share their experiences please? Feeling crushed! sad x

Pizdets Tue 25-Sep-12 07:25:21

Hi Earhat,

So sorry to hear your news. We were in your position in July and being told there's something wrong is the worst feeling in the world.

Did they do your blood for the combined test? if so, that could give you a better idea of your odds. I'm afraid things didn't end well for us, but obviously I Googled like mad before the final result and found loads of women who had high nt measurements and things turned out fine for them.

I found the ladies on here to b e lovely with answers to questions and support. there's also a charity called ARC antenatal results and choices, who are lovely. They don't post much info on their website but if you give them a call they're very friendly and happy to talk. I wish I'd called them sooner as it would have calmed me down.

I'm sorry not to be able to give you any answers and will keep fingers firmly crossed for you.

Piz

lovesteaandcake Tue 25-Sep-12 12:32:06

Hi Earhat
I had my 12 week scan last Monday with a NT of 3.8. My blood tests gave me a 1in5 chance. I had the CVS test on Thursday. It's not as bad as I thought it was going to be. I worked myself into a panic before the procedure but the Dr was great. I can only describe it similar to the discomfort of a blood text, but it is very quick. The after pain is not nice, but nothing a paracetamol can't sort.
I got my results last night & it's not good news for me sadly, so I'm just going through the motions now.
Stay as positive as best you can. It is an anxious time, & I send you big hugs of support. I hope you get the good news. Fluid behind the neck can just correct itself I've been told. Speak to all the professionals you can. Don't be scared. There is a lot of support out there for you. Thinking of you during this time. X

Earhat Wed 26-Sep-12 12:29:30

Hi Pizdets and Lovesteaandcake,

Thank you very much for your answers and I am so sorry to hear about your outcomes. I really hope things go well for you in the future. X
I don't know about you but the first bit of concern shown by the sonographer was the biggest shock, I am now much more emotionally prepared for bad news. I had the CVS today with a 15%-30% chance of all being normal. I am now waiting for the anesthetic to wear off : / and holding my breath till Friday for the results. The waiting is so frustrating, will let you know how it goes. Thanks again for your support, it really helps not to feel alone in this.
Earhat x

lovesteaandcake Wed 26-Sep-12 16:23:40

I think the initial scan was the worst bit too. As soon as she said something I knew the outcome in my heart. I've felt quite unwell during this pregnancy which I didn't get first time round. Might just be a coincidence though. You still have to go through the motions and keep that hope alive. Even when I prepared myself for the worst it was still hard hearing the news, but it was a relief. I've got everything crossed for you.
Your lucky to have the anaesthetic. I think I had a small one but still felt everything. Make sure you rest for the next day or two. There will be lots of support here for you if you need it. You really are not alone in this. Take care x

Earhat Wed 26-Sep-12 17:23:27

Thanks LT&C
I can't believe they didn't use an aesthetic for you as it still hurt! I am thinking of you as you must still be dealing with the sadness - big hug X
I know what you mean about hearing the news, it will still break my heart if it is bad and I am living in hope. It has taken a lot of soul searching deciding what we would do if the outcome isn't positive, but it feels easier having come to a conclusion.
I am scared of getting my hopes up but I don't want to give up either; so I now have two days stuck on a mental, not so merry-go-round, driving myself crazy! The annoying thing is I know it doesn't make any difference what I think as whatever will be will be. I know what you mean by 'a relief' having found finally out.
Thanks again for your support, it helps to talk to someone who understands : ) xxx

Earhat Wed 26-Sep-12 17:33:45

Obviously I meant 'finally found out'! : ) Also, when you said you didn't feel well, what exactly do you mean? I have never been pregnant before so I wasn't sure what to expect. X

AuntPepita Wed 26-Sep-12 17:41:18

Hi, a good news story for you. I had an nt of 4.6mm and a 1:3 for downs. I waited for an amnio which was clear and ds is now a normal16mo old.
Fingers x'd for you.
AP x

Earhat Wed 26-Sep-12 19:03:29

Thank you AP and congratulations on your baby! X

Pizdets Thu 27-Sep-12 07:02:40

Hi Earhat,

Nothing to add, just wanted to let you know I'm thinking of you and hope everything turns out ok.

Piz

lovesteaandcake Thu 27-Sep-12 13:12:58

Thinking of you today. Hope all is well. PM me if you want to xx

Earhat Mon 01-Oct-12 13:26:43

Hi
Thanks to all of you who replied, for your support, it has really helped during such a stressful period. Sadly we got the news today that the baby has Patu syndrome and so won't make it.
I agree with you, lovesteaandcake, that nothing quite prepares you for the bad news. Hope everyone who has been through this has lots of good luck in the future xxxx

Pizdets Mon 01-Oct-12 13:40:05

Hi Earhat, so sorry to hear your news. I'll be thinking about you for the next few days. If you have any questions about what happens next (i assume as you said the baby 'won't make it' that you will terminate, apologies if I'm wrong) then feel free to ask on here or pm me. I also called the ladies at ARC when we were deciding what to do and they were wonderful at talking me through the options.

Sorry again to hear your news and good luck.

Piz

legoboat Mon 01-Oct-12 13:58:42

Earhat - very sorry to hear your news. I had a similar experience at my 12 week scan last thursday and chose to terminate on monday 24/09. I am waiting to hear what the diagnosis was in my case as termination was advised solely on the scan. If you want to PM me about any details of this process, please do.
Wishing you all the best.

AuntPepita Mon 01-Oct-12 15:07:15

Oh I am so sorry it could not have been better news for you. I will be thinking of you.
Ap x

Earhat Tue 02-Oct-12 22:09:37

Thank you for all your messages of support on here. I don't know how I would have got through it all without you advice and kind words. Xxxx

AdiVic Thu 04-Oct-12 10:06:36

Earhat - you may not be back on this thread, but just in case you are, dont' be alone through this, there are plenty of lovely, brilliant women on here who can help. Feb 2011 we had the same as you, and we decided to terminate. It's a hard painful road to follow, but there is light at the end of that tunnel. I swore I couldn't go through it again, but I did, and all was fine. Plough on through, look after yourself and i hope you and your OH are ok. ax

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