Note: Please bear in mind that whilst this topic does canvass opinions, it is not a fight club. You may disagree with other posters but we do ask you please to stick to our Talk Guidelines and to be civil. We don't allow personal attacks or troll-hunting. Do please report any. Thanks, MNHQ.

To expect not to be told to stop breastfeeding in order to take a drug that has been classified as SAFE for breastfeeding

(216 Posts)

I have a rheum appt coming up and am psyching myself up for it. I have psoriatic arthritis and need to start DMARDs asap, however consultant refuses to prescribe them while I am breastfeeding. The paperwork I was given by the hospital says sulfasalazine is safe for BF, directly contradicting the consultant!

DS2 is 15m and on one feed a day now. I'm half tempted to say I've stopped, I won't as I don't tell lies to HCPs, but IABU to think the consultant is BU? I went in last time saying "but it says its safe" and was told I was wrong hmm

And, what do I do? If it were a GP, I could get a second opinion easily, yes? How do I do that with an NHS specialist?

JacqueslePeacock Fri 26-Jul-13 21:34:35

Well done. Great news.

Isabeller Fri 26-Jul-13 20:05:39

So delighted! Really hope you start feeling better soon xx Is

SoniaGluck Fri 26-Jul-13 15:56:25

Just caught up with this, OP. Glad it worked out for you. smile

kelpeed Fri 26-Jul-13 15:40:10
kelpeed Fri 26-Jul-13 15:39:49

👀

kelpeed Fri 26-Jul-13 15:39:31

hurray. really glad it worked out. and keeps on working out. Lactation consultants are worth weight in gold.

(no smiley thingy for boobs though, so how about these intead?

👀👓📀📀
🍡🍒

SirBoobAlot Fri 26-Jul-13 13:26:52

Hurrah smile That;s brilliant news. Hope the medication helps, and well done for standing your ground smile

ICBINEG Fri 26-Jul-13 13:24:53

nice one!

neunundneunzigluftballons Fri 26-Jul-13 13:04:46

Delighted to read that and I believe that even getting the specialist onto thepharmacist and Wendy will help him in the future with other b f patients.

Back from the hospital and need to say another, even bigger THANK YOU to everyone who helped!! grin

Between you guys, the local lactation consultant, and Wendy the pharmacist, we won! Woop woop!!

Maybe. But probably not. grin

tiktok Wed 24-Jul-13 15:25:33

Buttercat seems to have disappeared....maybe to do some thinking and reading smile

ICBINEG Wed 24-Jul-13 14:40:34

Just thought I would paraphrase the buttercat U-turn in case people missed it.

buttercat Don't take the drug even though it is listed as safe for BF because what if its wrong and there is a small risk...what if in the future someone finds a new risk?!?! You don't need to keep BFing you can switch to formula or cows milk.

Us: But there are actual known proven risks to giving formula and cows milk contains many drugs with at least as little or less certainty about safety as the drug in question, and it is also possible to be seriously allergic to cows milk.

<here is comes...brace yourself U-TURN>

buttercat yeah but the risk of anaphylaxis is tiny....only very few kids are that allergic to cows milk. Yeah there are risks to formula but its been really well scrutinised....oh and anyway I don't believe the research coz it doesn't suit me.

So in conclusion, there is no level of risk associated with BFing that buttercat finds acceptable (even in the case of fictional risks), but essentially any risk associated with formula or cows milk is fine...because it is small....

What is the cause of this blatant double think? Well it's obvious innit. buttercat feels that formula/cows milk is the default nutrition for a toddler and BM is some deviant variation...hence you just have to put up with risks inherent in cows milk, and should avoid incurring the 'unecessary' risks of BM.

Meanwhile back in reality cows milk is the deviation, BM is the default nutrition for a toddler and switching to cows milk is the risky alternative....

MrButtercat "Also used formula later as using ones common sense it's a far healthier and safer food than the vast maj of foods fed to toddlers."

Nearly spat my coffee out laughing at this! Clearly things like apples, bananas and chickpeas just don't make the grade.

5madthings Wed 24-Jul-13 00:31:35

Ahh but it might....not...as it would be informed consent and so no reasonable grounds to sue on...

Seriously the misinformation surrounding bfeeding is astounding at times sad

tiktok Tue 23-Jul-13 21:19:03

Please give an example of any case where a mother has sued her doctor for prescribing a safe drug to use when breastfeeding when the mother has been fully aware and able to choose, and chooses to continue, zatya.

This just does not happen.

zatyaballerina Tue 23-Jul-13 20:33:18

'who' never needed to be exposed to it.

zatyaballerina Tue 23-Jul-13 20:32:26

He's entitled to not want to take the risk with your toddlers health, it may later turn out to be dangerous and it will be on his conscience if it does. Not to mention the potential lawsuits if a drug he prescribes to a woman harms her child to never needed to be exposed to it in the first place.

VinegarDrinker Tue 23-Jul-13 20:32:14

But cow's milk and BM are "amino acid based". That's what both me and kelpeed were pointing out. More accurate to stick to calling them hypoallergenic imho.

Anyway it has diddly squat to do with the OP's issue so I am bowing out now.

maja00 Tue 23-Jul-13 20:27:25

I don't think "amino-acid" based suggests a superior product - it suggests something artificially created, or stripped down to the bare essentials. Most people would baulk at having to feed their baby an amino-acid based milk rather than a cow's milk (or even soya) based milk.

kelpeed Tue 23-Jul-13 20:19:45

oops my intent about this stuff was not clear (sorry)!.

but this is the problem with referring to it as "amino acid based formula " yes ? it is just not a good description for this product - everyone gets confused and starts linking amino acid withvarious source ingridents as if it was some sort of superior product because it has amino acids in it but without making theother point that all proteins are comprised of amino acids anyway.

anyway, i meant it as an aside comment to indicate that this thread has been well and truly hijacked.

I find this sad and distressing because OP (and likely loads of lurkers) is asking for advice which is very important to her and her baby relationship in the longer term. if Bcat wants to not feed over a few months or whatever that is his (!) perogative but i really wonder if he is in aposition to actual give out sdvice.

Mrbuttercats tone of his comments appear to be for pointscoring and distorting scientific advice, not providing. support. my point about his motive also remains. MrButtercat is spraying all sorts of guff about the perils of breastfeeding in mothers who need to take medicines to encourage fear and unnecessary anxiety and prpogate distress.

throwing in pseudo scientifc and misleading names for formals is part of this deliberate confusion, to bring it on equal terms to actual human milk.

Mrbuttercat - why are you so invested indismissing OP longer Bf goals when you have never been in such a situation yourself ? Doiyou work for an infant formula producer or an ancillary company?

SirBoobAlot Tue 23-Jul-13 20:12:50

Buttercat, do you work for Nestle?

Sorry, maybe this has already been said (I can't read all the shit stirring nonsense from the no life brigade) but just to say

You are entitled to a second opinion in the NHS

maja00 Tue 23-Jul-13 19:25:25

kelpeed, amino acid based formula is for babies who are allergic to cow's milk/soya milk. The OP isn't giving her baby hypoallergenic milk.

StayAwayFromTheEdge Tue 23-Jul-13 19:09:07

The info from the manufacturer is to use with caution as it is present in small amounts in breastmilk.

Probably fine to use, but there are no definite answers. Your consultant should be able to justify his decision though.

http://www.medicines.org.uk/emcmobile/medicine/3344/spc

Join the discussion

Join the discussion

Registering is free, easy, and means you can join in the discussion, get discounts, win prizes and lots more.

Register now