Okay, before I start I want to make it clear that I am here to wallow in self pity/vent about how bloody unfair life is for ds. If you don't like self-indulgence, you might want to look away now...
I haven't been here for a while, to be honest it wasn't helping me come to terms with ds having allergies (to egg and cashews). I am a bit of an over-thinker, and reading other people's experiences was just making me too anxious. We had our annual appt for ds in December last year, and although his egg results were still a strong positive, his spt for cashew had gone down to 2mm and his blood result was only 0.1 over the negative value. He was booked for a challenge, and though he failed to eat the full amount required, he managed over half. Taking into account his low results, and the amount he had managed in the hospital, we were given the all-clear to give him cashew at home and try to increase the amount given as he got used to eating it.
All went well for two weeks, ds liked the cashew (I mixed it with chocolate Philly and spread it in a sandwich!) and was eating it 2 or 3 times a week with no problems. After two weeks he came down with quite a nasty virus, but I continued to give the cashew. Lo and behold, a small red patch on his top lip. Now, he does come up with the occasional blotch, and I couldn't say for certain that this was a reaction, so I went really carefully the next time I gave it, a tiny bit at a time, and he reacted again with hives. Thankfully, because I was watching him, it only got as far as two spots, and I was able to give Pirition straight away. They disappeared almost instantly.
To say that I'm devastated for ds is an understatement. Having spent the last two years trying to adjust to the idea that we can't live with the freedom that we have always been used to, I had just about started to relax. We were planning a holiday - flying abroad, something I hadn't dared think about previously - and I was loving trips to the supermarket, buying all the stuff that we hadn't been able to before. I wish that this carrot had never been dangled in front of us, it would have been so much more bearable than being given some hope, then having it taken away again so quickly
I know I have to count my, and ds's, blessings. There's the fact that he could have more allergies, that he could be permanently and seriously ill with any number of conditions that would affect his quality of life to a far greater extent than this does, and also that we're very very lucky that he reacted so mildly to the cashew - the virus made him really poorly, and when I think how he might have reacted with his immune system so compromised, I know we probably got off lightly. That doesn't stop it being really, really shit though!
Anyway, a long post from me as usual, I could never be concise! I know we just have to suck it up, but I also know that you guys will understand where I'm coming from, and it does feel good to get it off my chest...I suppose I just have to hope that this means ds is on the way to outgrowing, and that we just need to be patient and sit it out. Thanks for reading if you got this far, anyone who would like to wallow with me is welcome to do so
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Allergies and intolerances
Just when you're starting to think that life might not be such a bitch after all...
20 replies
casabevron · 22/03/2013 17:52
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