TTC or pregnancy on prednisolone or similar part 9

(999 Posts)
sarahs999 Fri 31-Aug-12 06:24:33
sarahs999 Fri 31-Aug-12 06:28:13

And here's the list updated (can you tell I've got insomnia again?!)

The babies are arriving!

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4

BFP 3rd Trimester

coleyoz - V High NKC. DC#2, BFP cycle2, 41+1
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 37+0
Mercator - V High NKC, DC#2 36+2 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. – 35+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 35+5
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 31+5

2nd Trimester

HelterSkelter (IVF and immune therapy) -21+3
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 19+0
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 15+0
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 14+6 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 14+6

1st Trimester

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 12+3
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 11+3
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 7+6, next scan 4 Oct.

BFPs awaiting first scans

Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July.

TTC – ASSISTANCE - TTC 2ND or more

Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) – super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov
LJ71 - two older DCs, mc on treatment. SO, pred, hydroxy

TTC – UNASSISTED - TTC 2ND or more

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)

TTC – ASSISTANCE - TTC 1st

Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 – 5th cycle SO
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 – last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC – UNASSISTED - TTC 1st

ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks
Mollieboo - 5 early mcs between 4 & 10 weeks, 1 premature birth (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

GreenOlives Fri 31-Aug-12 08:10:03

Phew, found you! Thanks Sarah for starting the new thread. I just noticed this morning that the old one was full and I have no idea how to make a new thread so I came searching hoping that someone had done it already wink

Hope the weaning is going ok for you. I am impatiently awaiting the arrival of the doppler I ordered on Tues. I had a sudden wobble as I have no scan until 20 weeks now and that seems like such a long time! Just hope I can find the HB ok confused

Waves to everyone.

PQ77 Fri 31-Aug-12 09:17:18

Thanks Sarah, just marking my place.

sarahs999 Fri 31-Aug-12 09:22:03

Hooray olives you found it! I did wonder if I was going to have a lonely six months with a thread to myself smile.

It must be really anxiety inducing when the scans start to dry up but at least you should feel some movements soon. That's always fun.

The weaning is going ok though I've only done three days on 20mg so far. Today's the first day on 15mg. I had a mild headache last night but nothing too terrible. Must admit to stressing slightly about why it's now ok not to be on prednisolone - I know that the placenta is now developed etc but what stops the nkcs attacking everything again? Anyone who can eighteen me, id be very grateful!

sarahs999 Fri 31-Aug-12 09:22:47

Christ, bloody iPhone. Enlighten, not eighteen.

mollieboo Fri 31-Aug-12 11:31:29

Hi everyone, haven't posted for a while. Been keeping up with the news though and am really pleased that there's a lot of good news on here at the moment.

I'm now on 3rd month ttc on pred and hoping this month is the month! With all of my 5 miscarriages, I got pregnant first time, so read with interest about the "unfussy womb" theory, can't help wondering if that's me. When I got pregnant with my son, it took 3 months of trying so maybe there is something in the theory. Have been diagnosed with high NK cells too though so maybe I should just worry about one thing at a time!

I've updated the list as I was under "ttc unassisted 1st". Its complicated with me as I lost my son when he was 5 months old but I'll put myself under "ttc unassisted 2nd or more".

I think I've messed up my last two cycles by taking pred before I ovulated as I was panicking that the opks didn't work, but they did then show a positive after I started the steroids so I hope it didn't mess anything up. I've now bought a thermometer to start charting so that I can definitely see when I've ovulated. Has anyone done the bbt thing and did it help?

I totally understand what all you pregnant ladies are going through. I already can't imagine the worry I'll feel when I get pregnant next time. But hearing of all the babies being born on here does help. I found out last week that a man in my office and his wife just had a baby boy under Mr Shehata's plan, love hearing the positive stories.

The babies are arriving!
Friday 31 August 2012

Stogan - V high NKC - cycle#2, DC#1, Baby girl Ellyson (DC1) born Sunday (EMCS) 11/03/12 7lb13.5.
Digitalgirl - High NKC - BFP cycle#2, Baby boy Franco (DS2) born at 39+0 on Easter Monday, 9/04/12, 8 lbs 12
Coconutfeet - V High NKC, Factor II gene mutation, underactive thyroid - BFP pre-pred, started at 6 weeks, Baby boy Arthur born at 40+6 13/05/12 3.66kg
Comedy - V High NKC - BFP cycle#2, baby girl Matilda born DC#2 – 39 weeks (CS) 14/5/12 7lbs.
Igggi - High NKC & Hypothyroidism - BFP cycle#2, DC#2- Baby boy Thomas born (CS) at 38+6 16/5/12
BrownieGecko - High NKC, Hypothyroidism, & Glucose Intolerant. BFP Clomid cycle#3, DC#1 40+0 - baby girl Amelia born 7/06/12 (CS) 7lbs
Freelance - TTC#1 V High NKC Thyroid/hashimotos - 4mcs (4th on 1st Pred cycle), Hydroxy, Pred, Intralipids, Cyclogest, . DC#1 - Baby boy Sebastian (ELCS) at 39 weeks 17/07/12 8.11 lbs.
Cheerfulcharlie - TTC#1 V High NKC, MTHFR, DC#2/ (metformin, intralipids, no pred). 40+1 wks EDD 24/07/12 Baby boy born 26th July, 7lbs 5. EMCS
batteryhen - High NKC, factor v leiden. DC#1 BFP cycle 3. 38+4

BFP 3rd Trimester

coleyoz - V High NKC. DC#2, BFP cycle2, 41+1
FrozenNorthPole - RMC, NKC status unknown, Cyclogest, aspirin, 37+0
Mercator - V High NKC, DC#2 36+2 (Pred, Intralipids, Cyclogest) 4mcs (1 pre dd, 3 post - all at 6-8 wks) ELCS 14/09/12
Hopefulfor2nd - High NKC - TTC#2. – 35+5
dunnit - V High NKC - , IVIG, Cyclogest and Clexane. 35+5
PQ77 - TTC #2, 2 mcs, then DS, followed by 4 mcs - 6-8 weeks. V High NKC (BFP cycle one but mc) 31+5

2nd Trimester

HelterSkelter (IVF and immune therapy) -21+3
Suemays - TTC#2. DD, followed by 6mcs all 6-8 weeks. V High NKC. Superov but this BFP a natural one. (Pred & Hydroxychloroquine) 19+0
Bertha337 - High NKC, 1 ectopic, 2 mcs, est 15+0
GreenOlives - TTC#2 DS followed by 2mcs, 1 ec, 1 chem. High NKC, Pred from BFP. 14+6 Next scan 5th October
Delta10 - High VNKC, 5 mcs followed by DS Pred baby, 1 further mc. Est 14+6

1st Trimester

sarahs999 - DC1 followed by 5 mcs, high NKC (Pred), plus clexane twice daily for Factor V Leiden and Prothrombin, aspirin, cyclogest, intralipids. 12+3
Jemimapuddleduk (33). 3 prev mc's over last 2.5 years between 7-11. Not tested for NK but prescribed 20mg pred, fragmin, asprin and cyclogest on NHS. 11+3
HavingKittens, 4mcs, 2 TOP TS21, 7th pg, 5th SO Cycle, VHNKC, 40mg Pred, Hydroxy, Intralipids, etc. 7+6, next scan 4 Oct.

BFPs awaiting first scans

Hannah77 - DD born 2003, 3 losses 21 wks, 17wks, 7wks. BFP 25th July.

TTC – ASSISTANCE - TTC 2ND or more

Pinkdragon - High NKC. Pred Daughter (after 4 mcs) TTC #2, super ov.
Abney (44), TTC#2, SO 2, 6 MC No pred (2 chromosone, 4 unexplained), 1 DS Pred Cycle 1 & fragmin, 4 MC on Pred (1 fragmin),- super ov
Arianrhod - TTC#2 DD then 5 mcs 5-9 wks (2 on treatment), V High NKC, MTHFR homo, hypothyroid, TTC#2 (Pred & Hydroxychloroquine) – super ov
Brownstag - V High NKC, 3 yo DS is a Pred Baby! TTC #2 on Hydroxy, -super ov
LJ71 - two older DCs, mc on treatment. SO, pred, hydroxy

TTC – UNASSISTED - TTC 2ND or more

Iloveblue - under Prof Quenby for HNKC. 2 healthy boys, followed by 20 week loss, 2 early mcs, 15 week loss.
Willitbe - TTC#4 DS, DD, 1 mc, DS2, followed by 11mcs, (5-11 weeks). NKC not tested, TTC #4 (after m/c 12) Fertility cons prescribed pred.
Holldoll - TTC #2 High NKC - Pred, Cyclogest & aspirin. DS followed by 4 mcs, heart stopped around 5-6wk. Mc in March 2012 on treatment. Pred started at BFP.
ScooterChaser - V High NKC - TTC#2 (Pred & Hydroxychloroquine)
Mollieboo - 5 mcs, 1 DS (lost my little angel), high NKC - pred, intralipids, aspirin, clexane, cyclogest

TTC – ASSISTANCE - TTC 1st

Havingkittens - TTC#1 4mcs between 6-8 weeks, 2 Downs. Upgraded from High to V High NKC -12 pred replaced with Hydroxy 10/7/12 – 5th cycle SO
Pebbles - TTC#1 High NKC, PCOS, super ov cycle 1 (post IVF - 1 chemical, 1 mc, 2nd chemical on treatment/IVF - SO
duggs1976 - TTC#1 -4 mcs all 7-12 weeks. - TTC #1 – last chemical on treatment/IVF in April. SO
BellyD - V High NKC, MTHFR homo, TTC#1, 5mcs, SO, hydroxychloroquine
Carebear1 - V high NKC

TTC – UNASSISTED - TTC 1st

ChoccyPud - V High NKC - TTC#1 (Pred & Hydroxychloroquine). April - mc on treatment.
EchoJuliet, awaiting diagnosis, Preg 1 -MC 10 weeks (heartbeat stopped at 6w), mc 20w, mc at 8 weeks (heartbeat stopped at 6.5w)eurochick - TTC#1 High NKC, pred cycle 6, had 3 cycles of Super Ov, now on 2nd cycle of IUI No BFP in 20+ cycles of trying
London - High NKC, April - mc on treatment.
picolina - TTC#1 4 mcs, all around 6 weeks. V High NKC MC on treatment
Lemonsherbet - TTC#1 v high/high NK, Mthfr, thyroid issues, pred 1st trim & Intralipids 2nd on bfp
buster76 -V High NKC, Factor V Leiden.
Gransol - Seven mcs - all losses between 6 & 7 weeks

sarahs999 Fri 31-Aug-12 11:45:11

Hi Mollie, good to hear from you. Sorry you were in the wrong spot - they were rejigged a little while ago and I think a few people may have got into the wrong spot.

I've charted for years - can thoroughly reccomend fertility friend (fertilityfriend.com) to keep a track of it all. I now have my charts going back five years (with the odd break where I was pregnant) and it's an amazingly useful resource to point things out to disbelieving doctors and consultants. Aftrer a while it predicts when you will ovulate based on your earlier charts, which is useful. I basically took my temp every morning and immediately updated on my laptop before i forgot - all before getting out of bed! And I used the ov sticks too, and CM. Obsessive, moi? smile

It took me four goes to get pg this time so fingers crossed for you on your next cycle.

sarahs999 Fri 31-Aug-12 12:20:37

Just heard from my consultant and based on my bloods my nuchal risk is 1 in 460, which given my age is very good. So relieved. So I guess now I can tell people!

mollieboo Fri 31-Aug-12 12:33:13

Hi sarah, that's great news re your results, hope you have fun sharing your news.

Thanks for the info. I've put the fertility friend app on my phone and have read their website, I didn't realise how much there is to know. Wow five years of charts is impressive, will be forwarding any questions your way!

Jemimapuddleduk Fri 31-Aug-12 12:41:51

Hello everyone just marking my spot, will catch up properly later.
Had my scan yesterday and all l

Jemimapuddleduk Fri 31-Aug-12 12:42:12

Oops, posted too early. All l

Jemimapuddleduk Fri 31-Aug-12 12:44:36

Damn it! Scan went well, measured 11 weeks 2 as expected and we got discharged from the fertility unit which is a bit scary! Have been told to stay on pred till 14 weeks then wean. Have to stay on fragmin and aspirin throughout. Got normal nhs dating scan on Wednesday but told family and friends yesterday. Makes it feel more real. Can't believe it. X

mollieboo Fri 31-Aug-12 13:31:02

Hi Jemima, congrats on your scan, must be lovely to be able to everyone your news x

sarahs999 Fri 31-Aug-12 13:59:48

Congratulations Jemima, that's great news.

Can I just ask, are you with Mr Shehata? Just interested as to why yu're wearning off pred at 14 weeks instead of 12...

Havingkittens Fri 31-Aug-12 14:28:58

Hello. Well done for setting up the new thread Sarah, and also congratulation on your great Nuchal result!

Jemima, pleased to hear your scan went well, especially after your anxiety last week.

My next scan is Tuesday morning. I'm feeling reasonably calm as my symptoms are gradually progressing. I've felt quite queasy the last couple of days too. I know that there are still no guarantees but I'm trying to stay positive.

Work has been a bit quiet, which is ok as I have had lots of catching up to do but I'm getting a bit nervous about working again next week as my hands are really shaky! I should be ok as long as there's no liquid eyeliner or dark lipstick. Painting nails is a pretty tricky business too! Yikes.

Hope everyone has a lovely weekend. x

Chasinrainbows Fri 31-Aug-12 14:34:13

Hi all , I'm new to this thread . I recognise a few names from the super ovulation thread. Looking for some advice ladies . I'm currently on 3rd cycle of pred and 1st super ov. I got a v faint bfp yesterday on 14dpo on a frer. This morning still showing as not pregnant on a digi and intnet cheapies so still really waiting for bfp to be confirmed. I emailed the office yesterday but Louise is off till Monday , do you think I should go back on the pred ? I stopped at 10 dpo as the test was negative. I've had bloods taken today so one way or another ill know by Monday . As I had neg tests earlier it shouldn't have anything to do with the hgc shot . Thanks in advance xx

Jemimapuddleduk Fri 31-Aug-12 14:54:04

Hello,
rainbows, good news on the bfp. I would say yes go back on the pred. So annoying that you can't get through to someone medically trained though. Hopefully some of the other girls may suggest a way forward. I was on pred from before ovulation so havnt been in that boat.
kittens all the best for the scan next week and great news about progressing symptoms too. Your job sounds like it is a tough one when you are not feeling 100% and a bit shaky! It is way more exiting and glamorous than me (boring accountant!).
sarah, great news on nuchal, bet you are so relieved and it's great to be able to tell people. I am up north and under the care of a nhs fertility consultant who prescribed the pred and other things after my 3rd mc and during second iui round (I have never actually been tested for nk cells, I guess this isn't covered on nhs?). Not sure why I am on pred and bloody cyclogest till 14 weeks as 12 weeks seems to be the norm on here.
Hi mollie I hope this 3rd month is the month for you, fingers crossed. Good luck with the charting too.
pq, great to here you are home and back to home comforts. Glad that your little one seems to be keeping put too! Hope you are doing ok and not too uncomfortable with everything.
olives I hope the weaving is going ok. It is scared after regular scanning that there is then a big gap to 20 weeks. Good luck with the Doppler, I may have to invest to indulge my incessant mentalling.
Hi to everyone else
X

Chasinrainbows Fri 31-Aug-12 15:04:37

Thanks Jemima - I've taken it to be on the safe side and I'll wait till Monday for Cyclogest smile

sarahs999 Fri 31-Aug-12 15:14:40

Rainbows, on my current pg I stopped taking pred at 10 days past ov as I had a BFN, but then started it again at 12 days past ov as I got a +. Louise said it would be no prob to miss those two days adn indeed, that seems to be the case as I am now at nearly 13 weeks and all looks fine. So I would go back on it to be on the safe side.

Chasinrainbows Fri 31-Aug-12 15:33:10

Ah that's good to know Sarah thanks . And congrats on your pregnancy, hope all is going well x

Buster76 Fri 31-Aug-12 17:19:33

Hello all!! Thanks sarah for setting up new thread. I posted earlier on the other thread not realising it was full...doh!!
Are you with Mr S sarah Why are you not weaning till 12 weeks? Is that because you are on the lower dose? Lovely news on the nuchal too smile
Duggs Im like kittens fell relatively easily before steroids. Started steroids October.....nothing! Had a few months break then BFP just before starting ivf. Definately feel they affected my cycles.
rainbow I'd definately crack on with the steroids wink
Well done with the weaning megmum and your sound words of advice smile
battery if your there, you maybe busy changing nappies wink How long did you stay on clexane and aspirin for?

Well had my first scan today and the local hospital. Measuring 6 weeks with a flicker of a heartbeat smile Tried not to get too excited, been here 4 times before!! Im sure with the others ive bled before now so trying to see that as positive. I wish I could fast forward 6 weeks!! Ive never got past 9 weeks, so roll on 3 weeks. Seeing Mr S in 2 weeks for next scan and lipids.
Feeling a little sick although trying not to go too mental thinking about my symptoms or lack of them. Still knicker checking and nipple flicking confused

Could someone move me onto the 1st trimester please? Havent a clue how to do it!!?
Buster - 4 mc. VHKC (pred 40mg, lipids, clexane, cyclogest,aspirin) 6wks
Anyone recommend a hotel in Epsom? or nearby?

xxxx D

Havingkittens Fri 31-Aug-12 18:07:05

Great news on your scan Buster, one step at a time.... the waiting is pretty difficult though, I know all to well!

Has anyone else found that the pred has turned their hair to shit? I'm trying to work out whether it's the pred or just old age but my hair has been horrible for the last year or so. Really fine and brittle. I heat style my hair quite a lot so that probably doesn't help, but so much of it has snapped that I've just had it cut to bob length to stop it looking so frazzled.

Jemimapuddleduk Sat 01-Sep-12 08:58:48

Fabulous news buster!

Yes to general hair crappiness and I have only been on the pred 12 weeks. Dry and unruly!

Arianrhod Sat 01-Sep-12 10:30:31

Bookmarking smile

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